January 18, 2021 | Andrew
Aridhia, in their partnership with the European Prevention of Alzheimer’s Dementia Consortium (EPAD), are proud to facilitate the latest and final EPAD data release, the V.IMI. This contains the final longitudinal data for over 2000 participants of the EPAD Longitudinal Cohort Study (LCS).
Aridhia uses its Digital Research Environment to harmonise data from multiple contributors across Europe into an open longitudinal cohort dataset that enables adaptive, multi-arm proof of concept studies to be undertaken, in order to trial novel interventions for disease prevention. All these inputs (cognitive, biological sample data, derived imaging data, etc.) are ingested through Aridhia’s health data model to generate EPAD’s formal data releases.
These releases were originally made available only to EPAD partners for an embargo period of six months before being freely available to the entire research community, but this final release (containing a wide range of cognitive, clinical, neuroimaging and biomarker data) can be accessed by all external parties immediately. Screening for the first participant in the LCS occurred back in May of 2016 and finished in early 2020. All 2096 participants who consented and were ingested into the dataset are included in this final release. Anybody requesting access to this receives all the data in one of our
Aridhia Workspaces, so that they can immediately start their analysis and collaborate with other teams. A benefit of the research being carried out within Aridhia’s environment is that the audit and reporting of access meets the information governance protocols established for the EPAD program.
Researchers who are interested can now apply for this by visiting the EPAD LCS Research Access webpage, where they will also find a multitude of other related resources and information packs.